Question 1

How does hospice care begin?

Accepted Answer

Typically, hospice care starts as soon as a formal request or a ‘referral’ is made by the patient’s doctor. Often a hospice program representative will make an effort to visit the patient within 48 hours of that referral, providing the visit meets the needs and schedule of the patient and family/primary caregiver. Usually, hospice care is ready to begin within a day or two of the referral. However, in urgent situations, hospice services may begin sooner.

Question 2

Who will be involved in providing hospice services?

Accepted Answer

Hospice services are coordinated and delivered by a team of healthcare professionals of various disciplines, including physicians, registered nurses, social workers, home health aides, spiritual counselors, therapists, dietitians, and volunteers. This team is known as the “interdisciplinary team.” The interdisciplinary team customizes a plan of care which aims to manage the patient’s pain and meet the patient’s and family’s needs.

Question 3

Can my family be involved in hospice care?

Accepted Answer

Family members are encouraged to participate in the patient’s care as much as possible. Hospice views the patient and family as the unit of care. If the patient has no family members to assist in caregiving, hospice will work with a caregiver or willing friends or neighbors of the patient.

Question 4

Can the primary physician work with the hospice team?

Accepted Answer

Yes. Most primary physicians continue to plan most of the patient’s care in coordination with the hospice team and the hospice physician.

Question 5

Will hospice provide medicines?

Accepted Answer

Medications necessary for pain relief and symptom management related to the terminal illness are provided by hospice.

Question 6

Will hospice provide medical supplies and equipment?

Accepted Answer

Medical supplies (e.g., diapers, chux, gloves), and medical equipment (e.g., hospital bed, wheelchair, oxygen) necessary for pain relief and symptom management related to the terminal illness are provided by hospice.

Question 7

Can hospice care be discontinued?

Accepted Answer

A patient can discontinue hospice services at any time.

Question 8

Is hospice available after hours?

Accepted Answer

Hospice care is available ‘on-call’ after the administrative office has closed, seven days a week, 24 hours a day. Most hospices have nurses available to respond to a call for help within minutes, if necessary. Some hospice programs have chaplains and social workers on call as well.

Question 9

Can a patient be cared for by hospice if they reside in a nursing facility or other type of long-term care facility?

Accepted Answer

Hospice services can be provided to a terminally ill person wherever they live. This means a patient living in a nursing facility or long-term care facility can receive specialized visits from hospice nurses, home health aides, chaplains, social workers, and volunteers, in addition to other care and services provided by the nursing facility. The hospice and the nursing home will have a written agreement in place in order for the hospice to serve residents of the facility.

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